We arrive at the WOCN clinic thinking that an ostomy is "no big deal" and that lots of people my age have them. Well that's WRONG! The more the nurse talked the more horrified I became. When she told me that even though I wouldn't be passing stool I might still pass blood and mucus, I mentally lost it. I kept an engaging look on my face and inwardly freaked out. WHAT IN THE WORLD WAS GOING TO HAPPEN TO MY BODY! After the appointment my parents and I went downstairs to have blood drawn and we just lost it. We got the giggles and could not stop laughing. People probably though we were crazy, but it was how we coped, we just kept laughing and laughing about everything we had just been told.
Surgery was scheduled for December, and I returned to school. We upped my steroids, switched back to Humira, and I did supplemental nutrition during the day in order to try to build my body up before surgery.
Surgery at Mayo was really no big deal. I have a brief mental image of laying on the operating table waiting to be put under and thinking, "I wonder if the surgeon is going to think my tan lines are weird." I know, that's sorta pathetic, but I was already drugged-up at this point. Three days after surgery I was out of the hospital, but that very night I was in terrible pain and started throwing up. Out of the two complications with an Ostomy, I had developed one of the complications my first night out of the hospital: an obstruction.
Thankfully it cleared itself up by morning, but I still had to see the doctor and get hydration later that day. We set off for home on Saturday and on Monday I developed the second complication with an ostomy: dehydration.
It was the day before Christmas and I couldn't walk without my heart rate spiking, my feet cramping and starting to pass out, so off to the hospital we went. I was having so much output from my ostomy, that we tried a variety of drugs to slow it down. We tried: immodium, lomotil, codeine, hyrdocodone, and the final try, tincture of opium. Despite all these medicines, I continued to have 4-6 Liters of output daily and was going to the hospital for fluids many many times a week. Although I was back at school, I was only sort of living. I was going to the hospital 3x's a week, had zero energy and everything I ate passed right through me. I went to class, went to the hospital, tried to eat and slept. I thought my life was crazy then, but I had no idea what was going to happen next, in my not so normal life.