What if we made a video where we showed what I go through everyday with IV's, medications, and blood draws, and then showed a healthy version of me that I chase within a dream. So I became the dreamer, chasing my hope of being well one day. The project took a lot of time and was frustrating to do, but the end result was inspiring, it was a great reminder to never give up! It was a reminder that I WILL be well someday and that I have to continue to chase that dream in order to fight my disease. So today I share with you my dream of someday being well, in my not so normal life.
Last year while I was going through some very tough medical stuff and having to do IV fluids in my dorm room everyday, my communication class was assigned the project of making a music video. We picked a song written by one of the group members, Brian Stewart, and after hearing the song, an idea struck me. What if we made a video where we showed what I go through everyday with IV's, medications, and blood draws, and then showed a healthy version of me that I chase within a dream. So I became the dreamer, chasing my hope of being well one day. The project took a lot of time and was frustrating to do, but the end result was inspiring, it was a great reminder to never give up! It was a reminder that I WILL be well someday and that I have to continue to chase that dream in order to fight my disease. So today I share with you my dream of someday being well, in my not so normal life. Credit for the Video goes out to: Brian Stewart, Gracie Taylor, Sarah Brocker, Gray Shierholt, Elizabeth Winters.
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This is me earlier this summer with an ng tube down my nose and a PICC line pumping TPN into my arm. At this point I hadn't eaten for 3 weeks and it was awful. I couldn't eat because I was obstructed and had to have a tube just to suck all the gastric juice and bile being secreted. But here is my dilemma, my current medication isn't working so next stop is either tacrolimus (a transplant patient drug) or TPN. Total parenteral nutrition would mean no eating for an indefinite period of time. Rough. Crazy. Hard. Impossible? Would this be impossible, to knowingly deprive myself of the enjoyment of eating and instead receive all my nutrition via my PICC line? Well nothing is impossible, but if you were going to pick something that was as close to impossible as you can get, not eating would be it. The reason I would do TPN is because I know it would help. With the TPN I would have more energy and not feel nearly as Ill, I may even be able to things I enjoy and have a social life. So is not eating worth the benefits it would provide? I don't know, but if that is what we decide to try next for my Crohns, I am going to conquer the impossible and forgo food. As awful as this sounds, I may find that it makes my life a million times better and better is something I would like right now in my not so normal life. |
AuthorI've got 8 scars and am missing two feet of intestines and my life isn't normal, but whose life is normal? I want to use my experiences to help you, even if it means sharing embarrassing experiences. I am also looking to break the stigmas associated with IBD in order to make living with IBD just a little bit easier. Hope you enjoy! Follow my Blog here by submitting your email:
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