My mom will be posting once a week throughout February, so enjoy this post written by Karen Brocker as she writes what it is like to be the mother of a daughter with a not so normal life.
Crohns is a mean disease. It is often unpredictable and can strike quickly in its many manifestations. We have lived with it long enough that I’ve come to recognize my “I’ve taken a hit” syndrome. It usually occurs when Sarah’s body expresses a new kind of pain or condition for her to endure. It HITS out of the blue and then I am knocked down for the count. Like when she started getting migraines and I thought “Really? She already has severe nausea, abdominal pain, diarrhea and a fast heart rate…. And NOW we are adding migraines!?
We eventually added a neurologist to her list of doctors and new meds to treat her headaches. But I had been hit- and was hurting emotionally. I usually go thru a gambit of emotions including anger, depression and denial. I cry. I pray. I talk with friends. I eat chocolate. And sometimes I just go to bed. Eventually, I get back up again, having finally made mental space for the new reality of her illness and what she has to deal with in her not so normal life.
I've got 8 scars and am missing two feet of intestines and my life isn't normal, but whose life is normal? I want to use my experiences to help you, even if it means sharing embarrassing experiences. I am also looking to break the stigmas associated with IBD in order to make living with IBD just a little bit easier. Hope you enjoy!
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