So my parents and I made several trips up to Mayo Clinic and the doctors final diagnosed my “mystery illness” as a very very odd case of Crohns disease. Go figure, not only do you have to deal with the normal Crohns stuff, nausea, pooping, vomiting, but now I’ve got an extra special case including mouth Ulcers and high fevers. Well the medicine I was on obviously wasn’t working if I was still having normal Crohns symptoms and abnormal Crohns symptoms. After many many tests, and one of my least favorite tests of all time, an MRE, which someone who is nauseous just thinking about eating food, having to drink three bottles of barium is a special type of torture. But that torture gets worse because after drinking the barium, you have to lie in an MRI machine for an hour with your arms above your head…it is awful. I suppose the test was worth it though, but only sorta, because they couldn’t make any conclusions from the test, so then I needed an double-balloon retro endoscopy. Not gonna lie I think those are pretty need, well I’m really okay with any test that they put you completely under for, anesthetics are fun!
Well the scope showed that my ileosecal valve was scared open and upstream of the scaring there was severely active Crohns. Bottom line was I needed another small bowel resection. Later that day, I called my boyfriend to tell him I could not go to New York with him over Christmas break, because I needed surgery, we were sorta devastated, but the day got much worse.
That afternoon we sat down to talk to the surgeon. Very intelligent guy, but as many surgeons do, he had a bit of a ‘God complex,’ but how couldn’t you if you daily have peoples lives in your hands, but I digress. Because I was on steroids, methotrexate and Cimzia (a steroid, immune-suppressant, and an immune-modulator) my surgeon told me he thought I thought I needed a stoma. He then kept saying stoma this and stoma that and we all nodded like we knew what the heck he was talking about, but we didn’t. When the appointment was almost over, I finally asked, “what’s a stoma?” He kind of looked at me like I was dumb, so I smiled sweetly and he launched into a very simple explanation. His simple explanation made sense and he made an appointment for us to see the stoma nurse later that afternoon. This right here was were things got really really bad.