My doctor found severely active Crohns...everywhere. After seeing the active crohns my doctor put me on all sorts of medicines and recommended I didn't go back to school. I wouldn't take no for an answer and spent the whole week I was in the hospital determined to get back to back. After a week my Crohns looked exponentially better and I headed back to school thinking things would continue to get better. Things didn't get better and the medicine I was taking stopped working. I spent the rest of the school year doing 2 liters of fluids a day and getting up every hour during the night to empty my ostomy bag. I spent each day exhausted and every night sleepless, it was a terrible cycle.
I started getting Tysabri infusions to try to get my Crohns under control, but nothing really changed. The medicine was scary, because it can cause a deadly brain infection PML. Each infusion brought anxiety and no change. Everyday I fought to stay at school. Even though I didn't feel like I was living, I finished off the semester with a 4.0 GPA, and began my summer. My doctor had asked me not to work in order to focus on my health. So I spent the summer visiting my boyfriend in Lexington and laying out in the sun, well sort of laying out in the sun because laying out with an ostomy and a picc line is ...interesting. But the first half of the summer went well with not too make complications. So I just kept trucking through the summer in my not so normal life.