You want to know the truth? I am tired of fighting a constant battle each and everyday. I am tired of constantly worrying about what my body is going to do next, and having to miss out on the things I want to do. I am accustom to having to miss things due to being sick, but that doesn't mean it gets any easier. In fact at times it becomes harder, because the longer you fight, the more worn out you get, and truthfully I am worn out. It is times like these that I wonder if I am fighting a losing hopeless battle and just making it harder on myself by trying to do school. The truth is, I don't know if this is every going to get better. I can pray and take medicine and eat well, but I may never get better. That's the trouble with a chronic disease, it never ever is healed. It may go into remission, but it is always lurking around the corner, and that is scary. So next time you judge someone who is dealing with an illness, try to see things from their point of view and realize that a chronic disease is stressful and tiring. So take this blog and realize that the people around you and in your life have a lot going on and we should always be there for each other and help each other through, so those fighting aren't so tired, because sometimes I feel tired and like giving up in my not so normal life.
2 Comments
Kristina
10/27/2013 04:53:09 pm
I totally understand. This is some-what my story as well. I live w/a rare non-curable illness. I also suffer from IBS and some days I live in my bathroom. I have been ill since the end of 2011, Living in bed. Was in the Hospital 7x between 2012 & 2013. Had 2 surgeries. I never have energy that it takes to get simple things done. People do not understand & I am finding most don't even take the time to care. We are labeled Lazy people and I am fed up with it. I am not living a normal life and every year that I age my illness(s) just become worse. I have like 12 of them. I break out in hives all the time for reasons un-known to me or to doctors. I am allergic to everything. I swear I should live in a bubble. If you would like to connect with another that lives as you do, please e-mail me and we can start talking. I am in my 30's. I was diagnosed at age 15 with my first illness and then it just got worse from there on.
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Sarah
10/28/2013 08:44:26 am
Thanks for sharing Kristina. I'll email you so we can chat!
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AuthorI've got 8 scars and am missing two feet of intestines and my life isn't normal, but whose life is normal? I want to use my experiences to help you, even if it means sharing embarrassing experiences. I am also looking to break the stigmas associated with IBD in order to make living with IBD just a little bit easier. Hope you enjoy! Follow my Blog here by submitting your email:
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